The Drs. cannot find the echocardiogram that needs to be read so they are searching everywhere to locate those pictures. Hopefully we will know the results soon.
Also lost is some of the blood that needs to be ran for the immunology studies. Argh! This girls blood is precious, and she has no veins left for drawing blood. Fortunately they can do a heal stick to get the needed blood.
On a fantastic note. The results of the CT scan came back and Ava does have a thymus. This is wonderful news! Because without a thymus, Ava wouldn't have an immune system to fight off infections. Kids usually die within the first couple years of life, and even the common cold can be deadly to a kid without an immune system. This is probably the best news thus far, it means that Ava will not have to grow up as the "bubble girl."
My mom came up to stay with me again so I didn't have to be alone. It worked out well, Ava got sick over a long weekend, so my family wasn't at work and could hang out with me. When she came up, she brought some clean clothes for Ava to wear and a cute flower. I kept complaining to my mom how people would call her a boy, so this large flower clearly states she is a she!
And the very best news of all today. The Dr said we would be able to go home tomorrow. The plan is to do a chest xray and a sweat chloride test (to check for cystic fibrosis) in the morning and as long as those are good and she keeps her oxygen off for 24 hours we will get to go home.
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